The Yellow Wallpaper

Today is mild and rainy. The ground is covered with bright yellow leaves and there are still many more to fall. Last year at this time my mother was in the hospital with a pulmonary embolism, and I was frantically trying to arrange for her to move from rehab right into Garden Manor. That didn’t work, and so she would come home for another month and a half before the move.

We are facing a very different holiday season this year. I’ve had it in the back of my mind to formalize Thanksgiving plans, but I don’t want to think about it. I imagine that my sister and I will have dinner at Garden Manor–taking my mother out anywhere would be too disorienting for her. Our usual places will be closed that day, and I can’t see us taking her to a more upscale restaurant for a big dinner. I’m sad and nervous about it–I knew that the holidays as I’ve always known them would be yet another collateral loss, but you just don’t know how it feels until you’re there.

I’m still not sure how “comfortable” my mother is in her new home. It’s very hard to tell, and I’m only still developing the skills needed to read the clues in her behavior. It seems odd to be saying that at this point, but it’s true. I realized this one day when I visited and she was just beside herself with anxiety and sadness. She told me over and over again that she would die if I made her stay there, that she had never been as depressed as she was now. But during this jeremiad, whenever one of the staff or another resident would pass by us, my mother’s expression would light up and she’d wave brightly at them. I discovered that I could change such a black mood by suggesting that we go shopping soon, and asking her was kinds of things she needed from the store. She rarely actually want to go to a store, but expressing her “needs” makes her feel better. She says that she wants nail polish and lipstick and “school supplies” but what she really wants is to be heard when she tries to articulate her feelings. She wants some control, some response.

So I’m learning to see my relationship with her in smaller increments. I just can’t think too far into the future–she lives so much in the present that I have to accommodate. I’m not going to throw out the past just yet, but I’ve got to put it aside for now.

I’m still surprised at how emotionally difficult it’s been for my sister and me to come to terms with my mother’s disease and the decisions it’s forced. I’m still having a significant problem with depression, but I’m improving. I’m in a graduate seminar that’s a challenge, and I can’t remember if I’ve mentioned that I have another pup. I saw him on Petfinder and after a bit of an odyssey, he’s in his new home. He was listed by a Massachusetts rescue organization, but he was in Arkansas! I hadn’t been too keen on relocating a puppy from that distance, but when I talked to the wonderful rescue lady in AK and heard about all the dogs she’s trying to place, I took him. I’d been looking at his picture for so long by then and imagining him in my home, that he was almost mine, anyway. So the “puppy bus”–which makes the trip from Little Rock up to New England every couple of weeks–brought him to me, and in surprisingly fine condition. Waldo was presented to me with his tail wagging and beautiful amber eyes sparkling.

We think he’s a Catahoula Leopard dog–which I’d never heard of before. If you follow the Wikipedia link and scroll down to the picture of the patchwork dog, you’re looking at Waldo’s twin. He’s about 7 months old now and into everything. He counter-surfs and has successfully gotten out of the backyard twice. He and my 10-month-old Jasper have great adventures together (and also some squabbles) and are in the process of renovating my kitchen.

On a final note, I finally got to see Bob Dylan. He played at URI about a month ago, along with Elvis Costello, and I went with a friend of mine. The show was great–Dylan was his usual inscrutable self and sang some classics in unexpectedly new arrangements. We’d be bopping along with the music for a minute or so before realizing that he was playing “All Along the Watchtower” or “Don’t Think Twice.” Unlike Costello, who was positively garrulous, Bob didn’t speak until the encore, when he introduced his band. The older I get, the more his music means to me.

Only over the past couple of months have I understood what is meant by “caregiver’s burnout.” Waking up each morning with a sick feeling in the pit of my stomach, going to bed at night with a head full of circling obligations and regrets. Catching myself in the middle of the rare pleasant experience and thinking, “Whoa. Not so fast–don’t get TOO relaxed…” Envying the person ahead of me in line at Target because I imagine that she lives the kind of trouble-free life I don’t have. What’s funny about the last statement is my knowing that no one actually has such a life–a couple of months ago I was waiting in line at Dunkin’ Donuts and ahead of me was a man I’d gone to grammar school with, many years before. I almost spoke to him but before I got up the nerve, he’d gotten his coffee and was gone. And then this past week I saw his mother’s obituary in the local paper: she had had Alzheimer’s Disease.

But part of the power of such intense, jagged, fear-ridden experiences as caring for someone with AD is the black-hole effect. Everything around you gets sucked in, everything else is somehow related to your troubles and assumes their nature. Even the relatively minor headaches–the car muffler coming loose or losing the brand new book of stamps you just bought–become “And now–THIS!!” moments. Reverberations of the primary heartbreak as it pounds away at you.

Months ago I’d bought tickets to see Bob Dylan perform locally. As the concert approached I became anxious–I couldn’t pull myself out of my tight little orbit. First of all, I’d have to arrange for someone to spend the evening with my mother–otherwise, I’d never be able to relax. And then I’d have to take responsibility for my friends’ evening–if I bailed out or had to leave early, I’d be spoiling the experience for them, too. Then I realized that the worst-case scenario would be if I actually began to have a good time and then had to face the wake-up call of reality. So I sold the tickets. As the Man himself says, “You Ain’t Goin’ Nowhere”…

Shadows are falling and I’ve been here all day
It’s too hot to sleep time is running away
Feel like my soul has turned into steel
I’ve still got the scars that the sun didn’t heal
There’s not even room enough to be anywhere
It’s not dark yet, but it’s getting there

Bob Dylan, “Not Dark Yet” from “Time Out of Mind”